Me to You

Tuesday, June 06, 2006
Title__*::....

hmm.. i have so many stuff to blog sia! coz e tv shows here are v informative i feel.. have alot alot of feedbacks and thoughts after watching them..

like e day b4 for example, i was watching a show called 60 mins (i think singapore shld have this kinda show instead of alot of variety show.. some is gd.. but we have too much le..) it talks abt alot of things including news in e hollywood.. but its main theme for that day is always informative.. it was talking abt ppl who has a terrible disease called EB (if i m not wrong..) its a kind of skin disease where u will keep peeling and eventually u will have no skin.. and u will also have alot of probs on e skin including something like rotting where patches of ur skin would be 'eaten' i think.. (i caught this show half way.. missed e intro..) this disease is incurable and would only get worst and usually starts from baby.. its said that every human would have 10 deformed (or i dunno what u call that ) cells in e body.. and when this person and that person married and e deformed cells reacts, it forms e new 10 deformed cells in e baby.. and if e parents unluckily had the cells for making the cells for EB, then e child would get EB.. scary isn't it! i am so scared to have a baby now..

they were interviewing all e ppl who had this disease.. and many of them had one thing in common which is humour.. they all had a great sense of humour and i think thats what makes them strong.. they showed a clip of one of e patient who had EB and had only few months to live.. he had cancer (something that EB would lead to followed by death) and only had few months to live.. within e few months, the crew film down every parts of his life.. he tried v hard to educate e ppl who had EB around him and cheer ppl up.. and there was one scene where it shows him choosing his coffin.. so sad to see that.. but he looks so normal.. he was still joking w e person abt e designs and material of e coffin that he wants.. (somehow reminds me of e clips they show in NKF) and finally, shows his funeral.. e exact same coffin that he chosed.. but this time, he is lying inside.. many say that its a form of release and freedom for him.. what u think? i think it is.. coz he was smiling..

another guy they interview is abt 37 yrs old i think.. doctor said that he could not live pass 5 yrs old after he was borned.. but here he is.. and he says that every min and seconds he has now is a gift.. which really makes me appreciate my life and e ppl around me even more.. he loves rugby and was a super fan of one team.. the team is sort of his sense of motivation.. but he never knew that he was actually e motivation for e team..

there is also this small boy which they show who is only 7 i think.. he looks just like any other boy on one look (apart from e tube he has on his throat).. he loves to run abt under e sun but he cant do it for long.. coz it would be bad for his skin.. and he actually needs to rely on e tube to breathe.. he cant breathe properly by himself.. he also cant eat.. he needs to be feed through a tube that is fixed on his stomach.. and e tv shows how e father feeds him.. its so heart pain to see that.. the father actually lifted up his shirt and attched a tube and a 'pipe' to e thing on his stomach.. and started pouring something that looks like porridge (but more watery..) into e tube.. e father kept talking to him for fear that he would start feeling e pain or uncomfort.. but it doesn't help.. e boy was still laughing at e start when suddenly he started choking on his words and looks v uncomfortable.. it really breaks my heart when i saw that.. and e boy always ask his parents why he has to be like this and kept saying that he would die someday..

i feel sorry that i cant help much because i am also in financial difficulty now.. and cant help but kept thinking of charity shows that we have.. i dunno if australia have any charity shows for these at all.. all i noe is that they usually have booths set up on e street for donations.. i hope that e ppl who can afford it can help these ppl in whatever way they can..

and if YBZY remembers, there is a gal in TKGS whom i think has the same disease also.. coz it looks similar.. i wonder how she is.. i wish her all e best in fighting this disease.. and hope that she get well soon..

From me to you..

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